INformation Hub

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Know the Differences in Home Health Care


INformation Hub There are many different words when you are dealing with home health care. Home health visits, home health aide, nursing services, private duty nursing, and personal care services […]

December 8, 2021


Where to Get Help When Your Child is in the Hospital


INformation Hub Few families make it through a catastrophic event without needing help at some point. You may often find it hard to ask for help, but put aside your […]


Getting to Know Title V


INformation Hub The Title V Block Grant has provided a foundation for ensuring the health of women and children. Title V is the longest standing public health legislation. Title V […]


Disaster Planning for Children & Youth with Special Health Care Needs


INformation Hub Care for Children and Youth with Special Health Care Needs (CYSHCN) is more complex during emergencies because of their various health conditions and extra care requirements.  Families can […]


Coping with Disability Related Stress


INformation Hub Everyone has daily stress in their lives but the 43 million Americans with disabilities, their families, and friends are most likely to feel anxiety, fear, confusion, apprehension, frustration, […]


7 Steps to Creating a Personal Healthcare Plan


INformation Hub A personal health plan is a summary of an individual’s health status.   It includes: a physical exam, medical history and list of previous surgeries, patient-specific recommendations for […]


Consumer Assessment of Healthcare Providers and Systems (CAHPS)


INformation Hub The Centers for Medicaid and Medicare (CMS) develop and implement many patient surveys. These surveys ask patients (or in some cases their families) about their experiences with, and […]

December 7, 2021


Understanding the Children’s Multidisciplinary Assessment Team (CMAT)


INformation Hub The Children’s Multidisciplinary Team or CMAT is the team for individuals 21 and older who still have complex medical needs. The CMAT will assess the need for long-term […]


Special Ed Connection


INformation Hub Do you have a student with a disability who is receiving special education services? Gain a better understanding of special education processes and learn how to help your […]


Scholarship for Students With Special Needs Through Step Up For Students


INformation Hub Liam Thomas has Down syndrome and benefits from weekly occupational and speech therapies. But the 9-year-old whirl of energy also wants to do what other kids do at […]


Jan La Belle Scholarship Program For Individuals With Disabilities


INformation Hub The Jan La Belle Scholarship Program was created to honor Jan La Belle, Executive Director of Family Network on Disabilities from 1995 to 2005, for her passion and […]


Newborn Screening and Lifelong Medical Nutrition Therapy


INformation Hub Every day babies are screened for several genetic disorders by taking a small amount of blood from their heel. While this small heel prick is quick and often […]

November 29, 2021


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